› Forums › Limb Lengthening Discussions › Looking to correct Arm Length Discrepancy with Limb Lengthening surgery
- This topic has 7 replies, 8 voices, and was last updated 1 year ago by
stefc.
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- 1 year, 8 months ago
Hello everyone. I’m new to this forum and aware that many here are focused on achieving LL for cosmetic reasons on their legs. However, my situation related to LL is different yet still relevant. I hope someone here can assist. This forum seems like the appropriate place for my inquiry. Please bear with me as this post will be somewhat lengthy.I’m a 22-year-old male residing in the USA. Let me begin with some background information that may be helpful. This segment pertains to the cause of the difference and a prior surgery on my right shoulder that is linked to it. The length of my right arm is roughly two inches/5.08 cm shorter than my left arm, with a slight variation. I first observed this when I was around 13 years old in 2014, so the exact onset of this difference is unknown. Upon noticing it, I informed my parents, initiating a year-long process of visiting multiple doctors and eventually being referred to an orthopedic surgeon. I underwent several months of sessions with the surgeon. The primary concern at that time was my limited range of motion on my right arm, limiting me to only raising my humorous to a perpendicular position relative to my body. This restricted mobility could be classified as a disability. In December 2015, I underwent surgery to address this issue after numerous x-ray sessions and tests to diagnose the problem. It was discovered that half of the growth plate in my right shoulder had “died,” while the other half was still functioning and attempting normal growth. The compromised growth plate led to the bone growing incorrectly, forming a bone “shelf” around my shoulder, hindering full rotation and consequently stunting the arm’s growth. In contrast, my left arm and shoulder developed without any issues. During the surgery, the surgeons removed this bone shelf and another unidentified tissue mass. The exact cause of the partial growth plate deterioration remains unknown. Following the surgery, I regained most of my range of motion, and the alignment of muscles and bones on my right side improved.
Despite the success of the surgery, my shorter right arm remained a concern. When I inquired about LL to equalize the arm lengths, the doctor dismissed it as an unnecessary cosmetic procedure. I was disappointed by their lack of concern, but I chose not to pursue the matter further. Presently, I am seriously contemplating LL more than ever to address the discrepancy. I have extensively researched LL, primarily focused on cosmetic stature lengthening and leg length inequality correction. Information on arm LL or arm length disproportion is scarce, given its rarity compared to LLD. My arm length disproportion presents various challenges, ranging from minor inconveniences like difficulty resting my elbows on tables to more significant issues such as unsafe workouts (my attempts at exercise did not go smoothly) and occasional struggles in reaching tasks at my job (I will elaborate on this later). Furthermore, this condition significantly impacts my self-esteem. Observing it in the mirror serves as a constant reminder of my perceived failure. Obtaining LL for my arm is aimed at alleviating these challenges.
This is where I seek your assistance. While I have a general understanding of LL from the abundant information available, most of which pertains to leg procedures, I am hopeful that someone here can provide guidance on arm LL due to the limited resources on this topic. I will address my primary concerns.
I am curious about the expected recovery period. My full-time job demands physical activity involving walking, reaching, lifting, bending, and other strenuous actions. If I undergo this surgery, I may need to take time off work. How does the recovery process differ between arm LL and leg LL? Is the recovery period shorter, and can I bear some weight on the arm during recovery?
Is arm LL more cost-effective than leg LL, especially considering it involves a single arm with one device? I am considering the utilization of the internal Stryde nail device on my Humerus. Regarding costs, I am open to exploring options abroad if a competent doctor can be found, potentially resulting in cost savings of thousands of dollars.
Who are the leading specialists in arm LL? While I am familiar with LL practitioners in general, identifying the most suitable option for arm LL is crucial.
During the initial surgery, a metal plate with approximately seven screws was attached to my shoulder area and part of the upper humerus to stabilize critical bones. This plate remains in my arm to date. Could this pose any complications for undergoing LL? I am concerned about potential additional expenses and delays due to this preexisting hardware.
Would insurance provide coverage for this procedure? I believe it can be argued as a functional necessity rather than a cosmetic enhancement, given my limb length inequality and associated challenges. I would prefer partial coverage by insurance instead of bearing the entire cost. To ascertain insurance coverage, I may need to inquire directly.
I attempted to include images, but encountered technical difficulties. I will respond to any comments as promptly as possible, though I have work commitments. Thank you, everyone.
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- 1 year, 8 months ago
Hey, sorry to hear that. I don’t know much besides the fact that, as you mentioned, cosmetic limb lengthening is way less common than CLL and that the general consensus is that the humerus is way safer to lengthen than the forearm. From what I understand, your humerus was the problem area, but you should take a look in the mirror to see if only your left humerus is short or if both the humerus and forearms are short as well. The best-case scenario would be you only requiring humerus surgery since it is rare but still done sometimes for cosmetic purposes, whereas cosmetic forearm lengthening is pretty much unheard of.00 -
- 1 year, 8 months ago
Unnecessary long textYou contact
Rozbruch
Assayag
Paleyand engage with their assistants over the phone, informing them of a doctor-certified arm length discrepancy and inquiring about the available solutions using internal nail or external frame
Rozbruch commonly utilizes the TSF frame for humerus based on a recovery document I came across. This approach offers high precision despite being invasive, but undergoing such a procedure for a year during recovery may not be desirable
Regarding insurance, as this is not a cosmetic procedure but rather addressing a verified disability, it is highly probable that the expenses will be mostly covered.
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- 1 year, 8 months ago
Yes, only my right humorous is stunted. Luckily, both of my forearms are normal so I would only need humorous lengthening.00 -
- 1 year, 8 months ago
Thank you. I realize it was lengthy, but I added additional information in case it influences the result.00 -
- 1 year, 8 months ago
Hey! I had the same arm limb length discrepancy as you. I reside in France, and about a month ago, I underwent my arm surgery (with the right humerus being 8 cm shorter than the left). I currently have an external fixator in place. So far, everything is progressing well. Furthermore, I have experienced a 2.5 cm increase in limb length since then. Additionally, I will commence my physiotherapy on Monday due to a decrease in my range of motion that has begun.It’s actually fantastic. I am not worried about the scars; they will gradually diminish with time. The joy of having both arms at the same length and everything else far outweighs any concerns about scars.
Feel free to reach out if you need assistance because I empathize with your situation.
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- 1 year, 8 months ago
Hello! Apologies for the delayed reply. I am interested in discussing this with you. To begin, may I inquire if you experience an improvement in your mental well-being following the limb lengthening procedure? I frequently struggle with feeling distressed about my limb length inequality.00 -
- 1 year ago
Hello! I underwent surgery about 2 months ago, due to my right arm being 8cm shorter. The surgeon recommended an external fixator as with an IM nail; a max of 5cm can be achieved.The lengthening phase started on week 2 at 0.75mm/day, and since then, I have gained about 3.5cm in length. The max weight I can carry for the time being is 0.5kg as per doctor’s orders and got back to work 1 week post-op.
I have experienced a decrease in range of motion and will be going to Physio in the coming days.
Feel free to reach out if you have any questions, happy to help.
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Tagged: Limb Lengthening
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