Extensive limb lengthening

Forums Limb Lengthening Discussions Extensive limb lengthening

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    emptyLard2
    Participant
    Recently, I have been perusing articles concerning significant limb lengthening for individuals predominantly diagnosed with Achondroplasia and Hypochondroplasia. I have been contemplating sharing some reflections I have had.

    As per data from 2021, the typical lengthening reached 27 cm for achondroplasia (12-40 cm) and 17 cm for hypochondroplasia (ranging from 10-25 cm). It exhibited an average increase of 26 cm (ranging from 15-30 cm) for adolescent-onset. There were minimal short-term complications observed.

    Since I haven’t encountered the practice yet, I am sincerely curious about what hinders individuals without such conditions from attaining these objectives with some effort, even in their adulthood, disregarding proportions and low motivation, and focusing solely on bone healing and soft tissue adaptation, as indicated by numerous analogous studies. These outcomes appear to defy the established safe standards set by many surgeons (8cm, 6.5 cm for femurs and tibias, respectively). Some argue that the muscle structure of these specific patients is distinct and can adapt relatively quickly to change, though I believe this lacks substantial evidence (any provided would be welcomed). Furthermore, this specific study raises uncertainties about the notion that ‘the longer your bones, the more you can achieve.’ In my contentious viewpoint, the key factor enabling such progress was the resolute determination of the patients, as they all surpassed their limits significantly to approach average height as closely as possible.

    What aspect am I overlooking?

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      gutturalSwift
      Participant
      This was likely completed in multiple stages with years separating each limb lengthening. I believe I remember seeing it on one of his presentation slides a long time ago.
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      jubilantChough
      Participant
      Yes, I too considered that, but I’ve come across research indicating they achieved equivalent improvements in a single procedure for femur and tibia.
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      gloomyWasp
      Participant
      Uncertain then….perhaps it is due to their age. However, individuals routinely achieve 12CM using Becker. Conversely, the Precice nail has a maximum of 8CM limit intentionally. Hence, it is challenging to determine.
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      gutturalSnail
      Participant
      What is the cause?
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      wakefulRaisins
      Participant
      Exactly, I’m planning to undergo 12 cm femur and 8 cm tibia limb lengthening. It’s simply about hard work and pain tolerance.
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      cruelSeagull1
      Participant
      It is challenging to articulate in uncomplicated language, yet individuals with congenitally very short legs might possess the ability to elongate their muscles and tendons to regular lengths effortlessly.
      In essence, their muscles and tendons are flexible and have ample space for stretching.
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      grumpyCurlew7
      Participant
      Why not decrease this by 3cm on both segments? 8cm of tibias limb lengthening is likely to have a significant negative impact on you. Users on this forum often express regret about not opting for a smaller increase. A total of 14cm is a substantial height gain, and you will likely maintain functionality.
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      euphoricGatorade0
      Participant
      I become slightly irritated by remarks such as ‘you’ll definitely regret it’ or ‘it’s a death sentence’ that lack any specific explanations. As I mentioned, there are individuals who have achieved these advancements. Can you please elaborate on how precisely he would experience negative consequences? If you are asserting something, kindly provide a substantial argument for it.
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      drearyMagpie5
      Participant
      Are you familiar with any resources regarding this topic?
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      somberCoconut
      Participant
      I gave you an instance about the specific remark you referenced. MDOW underwent extensive limb lengthening on his tibias (approximately 8CM) and encountered a complication (possibly tarsal tunnel, though uncertain) that still troubles him many years afterwards. He expressed regret for not opting for a lesser increase. Another issue is the development of ballerina foot. An increase of 8CM on your tibias is significant. This amount closely aligns with the recommended limit for femur lengthening.
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